Sailing by

 Today should have been the first day of our ridiculously extravagant holiday. It was only a cruise round the UK but we really did push the boat out (no pun intended). On Monday, when it became clear that P’s health was declining quite rapidly, rather than being a downward blip, I had to cancel it. 

Of course, the cruise (Fred Olsen) was entirely unsympathetic and charged us the full cost, right down to trips we had had to book only the week before  to get ashore. We could have gone anyway and risked P needing medical attention, being taken to hospital or even air lifted out, but it seemed very selfish and unfair on other passengers and the crew. Not something that was taken into account when deciding not to reimburse us any money, not any compassion shown for a pretty difficult situation . So to anyone else, I’d say cause as much disruption as you like - or don’t book with Fred Olsen at all. I certainly won’t. 

It would have been lovely to get away but P has suddenly and shockingly deteriorated. He has been very positive and optimistic throughout the last two years, but he says he feels like he’s dying now. He is not so angry but he is grief stricken and worried about me. Any strong emotion brings the onset of tears - and if one of us goes, the other one does too. And he has become quite thin and frail. I’ve had to work from home as he has needed me. For little things but also getting past the receptionists to get the GP to call and issue prescriptions. It was my birthday on Friday and quite apart from spending that week cancelling a whole range of nice plans, it was a really rotten day: somehow it being a day that should have been happy, made it all that much harder. 

Heartache

 I thought heartache/break was an emotional concept, but it turns out it’s physical. I have two distinct types - don’t know if this is typical - the most common feels like something heavy and stinging is being poured into my heart. It spreads horizontally and up to my chin. The other is like a pulse of electricity which again starts in my heart and zips down to my toes and up to my head. Both physically hurt. 

This is even harder than I thought. I feel so brittle that a nudge and I’d shatter. But that’s fanciful - all we can do is keep going. P is still here. He has good days or good parts of days. He was hospitalised with jaundice and had a stent put in, but is at home. We’re supposed to be going on holiday next weekend but the one thing I’ve learnt is that you can’t plan. Not even a day ahead - certainly not a week. 

And this is incredibly selfish but one of the things I find most difficult is that when he’s in pain or scared, he gets pretty mean and is quite unpleasant (and personal) to me. I need to just absorb it and let it go, but I find it so hard, I am just wretchedly miserable. And I am scared that this is how I’ll remember him. That wouldn’t be fair and I think would be very painful.